Bracelets for a NF CURE

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Betty Ann Shuttleworth

Joined Aug 9 2011
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65 years old
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Bracelets for a NF CURE

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About Me

Hi there .. I always wonder what to say here! I am 58 and found out about 11 0r 12 years ago that I have NF. I was adopted and always suffered from pain but attributed it to accidents and broken leg or arm.I did however hurt my back-it would not heal and Dr. sent me for an MRI and low and behold it was finally diagnosed My birth brother had it and my birth sister has synptoms! I live each day with a positive note that yes,I have this and nope it is not leaving so may as well just LIVE! 

 The only sad past is that I am the only one here that has it so there is only support from family,some friends and medical people. I have met and became friends with people from, the Toronto areas but I do not get there very often. E-mails are my connection with people!

My tumors are all inside except for 3 or 4! I have many,many ones on the spinal area,hips, right leg more than left one.I also have them in both arms and hands.

 My dog gets me motivated to walk her 4 times a day and that is good.We do not go far but, I do get out!

Well not much more.It is just me and the dog(Cricket)!

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